TrinityKids Care Helps Ease the Way for 14-Year-Old
January 15, 2014
Seeing a loved one in pain is extraordinarily difficult. When it is your child who is suffering, it is indescribable.
Noor is a 14-year-old fun-spirited girl who loves to learn, draw, and sing. She lives with her mother, father, and two older brothers and is often referred to as the center of the family.
After facing many serious health complications in early childhood, she was diagnosed with Morquio Syndrome in 2009 after her family relocated to the United States. As a result of her condition, she faces chronic heart disease and experiences severe, debilitating pain in her legs on a daily basis.
Two years ago, in hopes of improving her quality of life, Noor’s family reached out to TrinityKids Care, an award-winning pediatric hospice and palliative care program.
Not only did Noor need the support of medical experts to help her through the pain and allow her to live the fulfilling life she deserves, her family also needed the support of compassionate caregivers who could understand their challenges and provide them with much-needed comfort.
As Noor often says, “If my family is happy, then I am happy.”
Kaya and Lesa, a social worker and nurse with TrinityCare, respectively, have cared for Noor since she came on service. They visit her home regularly to discuss her progress with her family and give them tools to help her live more comfortably day to day.
Noor has also participated in a range of supportive services offered through TrinityKids Care that benefit her both physically and emotionally. She receives massage therapy, which helps alleviate the severe pain in her legs. Since she is interested in art, the program also provides in-home art and music therapy to help her explore and express her feelings.
Today, Noor goes to school and continues to enjoy drawing and singing in her spare time. In fact, she recently wrote a song with the help of her music therapist, of which she is very proud.
Noor’s family is deeply thankful for the life-changing support they have received from TrinityKids Care. They truly feel that the highly personalized care has made a positive impact on their daughter’s life – and theirs, as well.
Arsal, one of Noor’s big brothers, is so inspired by Kaya and Lesa’s work with his sister that he hopes to become a caregiver one day so that he can help other children like Noor.
“You see people doing good, and it makes you want to do good, as well,” says Arsal.
Noor’s caregivers feel that this experience with such an extraordinary family has, in exchange, taught them lessons of gratitude, faith, compassion, and humility that they will never forget.
This is just one example of how TrinityCare Hospice can provide comfort and outstanding support to our patients and their loved ones. An innovator and leader in providing hospice care, Providence TrinityCare Hospice has five clinical teams and a staff of more than 180 dedicated professionals throughout Southern California.
Our programs and services are more in demand than ever. In fact, TrinityKids Care – the only dedicated pediatric hospice program in Los Angeles and Orange counties for youth suffering from life-limiting and terminal illnesses – is currently serving 90 children, an all-time high.